Finding Accurate Accessibility Information

Isaiah, Mackenzie, Kaylynn, Avayha, and Elijah in his wheelchair at Desert View Watchtower on the south rim of the Grand Canyon
Isaiah, Mackenzie, Kaylynn, Avayha, and Elijah in his wheelchair at Desert View Watchtower on the south rim of the Grand Canyon.

Amy Tarpein is the Founder of Elijah’s Baby Bucketlist, a social media movement raising awareness about lissencephaly while helping 6-year-old Elijah live life to the fullest. She volunteered to cover the #7 barrier to special needs family travel – accurate accessibility information. As a single mom to ten children, including one with a rare disease, she’s learned quite a bit from her journeys! Below she shares accessible travel planning insights that can make travel more accessible for all of us!

Being a single mother to ten children is no easy feat, but when one of your little ones is terminally ill, the challenges of everyday life can become overwhelmingly complex. Despite these challenges, as a mother, my priority has always been to create lasting memories with all my children, ensuring that they experience joy and adventure regardless of our circumstances. Traveling with a terminally ill child presents its own set of obstacles, but with careful planning and the right resources, it is indeed possible to embark on memorable journeys that cater to the needs of each family member.

The Need for Accurate Accessibility Information

For families with disabled children, finding accurate accessibility information about destinations is crucial to ensuring a smooth and enjoyable travel experience. Planning ahead is key, and I have learned through my own experiences with Elijah’s Baby Bucket list that research is fundamental in making informed decisions about where to go and how to get there. Here are some valuable tips for families traveling with disabled children on how to find accurate accessibility information about destinations.

mom holding little boy - both with big smiles
Elijah and his mom riding his first mountain Coaster in Pigeon Forge TN

Tips for Finding Accessibility Information

Online Resources:

Utilize online resources dedicated to providing information on accessible travel destinations. Apps like
Accessiblego and Wheelmap offer detailed accessibility information for a wide range of locations, making it easier to plan your trip with confidence.

Local Organizations:

Reach out to local disability organizations or advocacy groups at your destination. These organizations can often provide up-to-date information on accessible facilities, services, and activities in the area, ensuring that you have a reliable source of information before you travel.

Review Websites and Forums:

Online platforms where individuals share their experiences about traveling with disabilities can be invaluable. Reading firsthand accounts from other families can provide essential insights into the accessibility of different destinations and help you make informed decisions. One of our favorite travel bloggers is Curb Free with Cory Lee.

group of adults and children smiling towards the camera
Elijah’s Baby Bucket List crew meeting Curb Free With Cory Lee for the first time.


Travel Agents:

Consider working with a travel agent who specializes in accessible travel. These professionals have the expertise to recommend destinations that cater to the specific needs of disabled travelers and can help you plan a trip tailored to your family’s requirements. We love the people at Wheel the World!

Accommodations:

When booking accommodations, make sure to directly contact hotels, resorts, or rental properties to inquire about their accessibility features. Ask detailed questions about room layouts, bathroom facilities, and any additional services they offer for disabled guests. Typically, a general manager can provide assistance.

Transportation Options:

Research the transportation options available at your destination. Look into whether public transportation, taxis, or private car services are equipped to accommodate individuals with disabilities and inquire about any special assistance that may be available.

hot tub bubbling in front of cityscape

Detailed Itinerary:

Plan your itinerary in advance and include information about accessible attractions, restaurants, restrooms, and medical facilities along the way. Having a well-thought-out plan can help reduce stress and ensure that you have a smooth travel experience.

Hospital Locations:

When traveling with a terminally ill child, it is crucial to have access to major hospitals along the way. Familiarize yourself with the locations of these hospitals before you embark on your journey. Being aware of where the nearest medical facilities are located can provide you with a sense of security and preparedness in case of any emergencies.

Important medical documents :

family posing in front of Hoover Dam. little boy in mom's arms
Isaiah, Avayha, Kaylynn, Mom, and Elijah at The Hoover Dam


Additionally, it is advisable to carry important medical documents and contact information with you at all times. Prioritize the well-being and comfort of your child by ensuring that you are well-equipped and informed throughout your travels. We bring a medical sheet that includes diagnoses, normal vital signs, medications, allergies, and contact information for our core medical teams. We have a travel Template available so you have all medical information ready and on hand. It can also be helpful to have a list of emergency contacts.

Tourism Office:

In addition to researching online, it can also be helpful to reach out directly to the destination’s tourist office or customer service department. They may be able to provide you with detailed information about accessibility features, as well as answer any specific questions you may have about traveling with a disabled child. Don’t hesitate to ask about things like wheelchair rentals, accessible transportation options, and any special accommodations that may be available. The friendly staff at Memphis Travel are extremely helpful!

Be thorough:

four kids smiling in front of an "I love Memphis" sign
Avayha, Isaiah, Mackenzie, Elijah, and Dog at Memphis Travel in Memphis TN.

When researching accessibility information, it’s important to be thorough and ask specific questions about your child’s needs. For example, if your child uses a wheelchair, make sure to ask about the width of doorways, the presence of ramps, and the availability of accessible bathrooms. If your child has sensory sensitivities, ask about noise levels, crowds, and any quiet spaces that may be available. Places like the
St Louis Aquarium have special accommodations like a sign language interpreter.

Be Flexible:

Despite your best efforts to gather accurate accessibility information, unexpected challenges may still arise during your trip. Stay flexible and be prepared to adapt your plans as needed to ensure that everyone in the family has a positive experience.

Traveling with a Positive Attitude

accessible travel planning pinterest pin
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Remember, every journey, no matter how challenging, is an opportunity to bond, grow, and cherish the moments spent together as a family. Traveling with a child who has disabilities can present unique challenges, but with careful planning and research, it is possible to ensure a smooth and enjoyable trip for the whole family. With the right preparation and a positive attitude, you can create lasting memories and unforgettable experiences for your family.

Remember to be flexible and adaptable. Despite your best efforts to gather accurate accessibility information, unexpected challenges may still arise during your trip. Stay flexible and be prepared to adapt your plans as needed to ensure that everyone in the family has a positive experience.

Traveling with a terminally ill child presents its own set of emotional and logistical challenges, but with careful preparation and access to accurate accessibility information, families can embark on
meaningful journeys that create lasting memories. By taking the time to research destinations, connect with local resources, and plan ahead, families can enjoy enriching travel experiences that cater to the unique needs of every family member.

The Reward of Traveling

traveling with a disability pinterest pin

Finally, remember that traveling with a disabled child can be a rewarding and enriching experience for the whole family. By taking the time to find accurate accessibility information and plan ahead, you can ensure that your trip is as stress-free and enjoyable as possible. So take a deep breath, pack your bags, and set off on an adventure that your family will remember for a lifetime.

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